Rare diseases kill, but you can help

Kirsten and Matt Smith Story

Australian Womens Weekly Media Coverage

An ‘A Current Affair” interview and news segment: http://aca.ninemsn.com.au/article/9087446/dementia-kids An ‘Australian Womens Weekly’ article, shown below.Continue Reading

ABC News Interview About NPCD

http://www.abc.net.au/news/2015-03-01/childhood-alzheimers-research-may-hold-key-to-treating-dementia/6271068  Continue Reading

Penn News | Penn Vet Researchers Identify Effective Treatment for Niemann Pick Type C

A quick update on some new research progress. Find out more here: http://www.upenn.edu/pennnews/news/penn-vet-researchers-identify-effective-treatment-niemann-pick-type-cContinue Reading

$50,000 CODRT Grant

Our scientists have been rewarded a grant for further research…. we’re getting closer and closer as each dollar gets committed to NPCD research. Million Dollar Bike Ride Grant Program from Orphan Disease Center, University of Pennsylvania Principal Investigator: Professor Ashley Bush Project title: Dual targeting of defective lipid and metal pathways in Niemann-Pick type C disease:…Continue Reading

SAVE THE DATE: Cure4Ed Family Fun Day. Sunday 26th of October

Put it in your diaries and standby in the next day or so for a detailed update on our little guy  and further details of the day and how you may wish to participate. And photos and  thank you from the last event: the movie night: http://cure4edsharp.wordpress.com/fundraising/Continue Reading

Help little Eddie who has two rare diseases, says mum

When Eddie Sharp was diagnosed with a rare disease at birth known as ‘childhood Alzheimer’s’, it was a devastating blow for his family. But then shockingly, when he was two, it was discovered he also had a rare form of cancer, totally unrelated to the other disease. His mum Ali Malone, 41, and dad Peter,…Continue Reading

A Call for Donations for the Silent Auction

Feeling like you want to jump on the band wagon and help in some way, then why not pledge a donation for our Silent Auction which will be held on the Family Fun Day on Sunday 26th of October. Donations could be small or large, from your work place, a gift voucher you purchase and donate,…Continue Reading

A Long Over Due Fundraising Update and Thanks

[View all the photos over here] The fundraising momentum continues with another 2 fundraisers since our Movie night in May, both organised without me (can you believe it?) and so a very big thank you is long over due to all of those who organised, participated, donated or supported. Judy Sharp’s Bridge Day At the…Continue Reading