Category Archives: General News

Cycle 4 Sam – Shining his star…..Part 1

A few photo’s from the Cycle 4 Sam Benalla leg of the ride from Bright to Adelaide. It was wonderful and inspiring to meet Sam Roberts’s family and the Cycle 4 Sam team as they began their 2010 journey. A screening of Sam’s NPC documentary “Shining his Star” was emotional viewing for all whom attended the dinner…Continue Reading

It’s been a while…

So much has been happening since our last update it’s hard to know where to start. Lets talk about the NPCD Pamper Day held in Wodonga first…… WOW….. what a day, we can comfortably say that the day was a success with the people of Wodonga exceeding our expectations with their level of support! Huge…Continue Reading

Shining His Star….

The Sam Roberts Family fund third “Cycle 4 Sam” event is approaching and this time it is in our local area. On September 27, 2010 Cycle4Sam III will be held, a 1200km bike ride from Bright in the Victoria high country, to Adelaide, via Bendigo, the Grampians, and Robe. Some 40 cyclists will stop overnight…Continue Reading

Ladies Pamper Day

LADIES PAMPER DAY $ 50.00 – 1.00PM TO 5.30PM NPC DISEASE FOUNDATION OPEN MARKET 1.00PM TO 5.30PM GOLD COIN DONATION DINNER EVENT $ 25.00 6.30PM TO 11.30PM. Discounts apply when attending both events. Ladies and Gentlemen all welcome at dinner event. All proceeds go to the Australian NPC Disease Foundation to assist in “Persevering to find…Continue Reading

Radio interview on NPC Disease (abc Radio)

Radio interview conducted on the run up to the Wodonga Ladies Pamper Day and Dinner, broadcasted across the North East and Goulburn Valley of Victoria. Radio compare was the lovely Gaye Pattison interviewing Mandy Jacobs (President of Australian NPC Disease Foundation) and Sharon Fanning (Fundraising Coordinator) http://blogs.abc.net.au/victoria/2010/05/npc-disease-awareness.html?site=goulburnmurray&program=goulburn_murray_breakfastContinue Reading

Albury Wodonga Midweek Express – 21 April 2010

In the lead up to the Wodonga Pamper Day we are pleased to have the support of the Albury Wodonga Midweek Express. The exposure is invaluable in creating awareness for NPCD within our local communities.Continue Reading

Dr. Marc Patterson a paediatric neurologist at Mayo Clinic discusses Niemann-Pick disease type C.

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