When Eddie Sharp was diagnosed with a rare disease at birth known as ‘childhood Alzheimer’s’, it was a devastating blow for his family.
But then shockingly, when he was two, it was discovered he also had a rare form of cancer, totally unrelated to the other disease.
His mum Ali Malone, 41, and dad Peter, 43, who have two other children, said the news was “mind-blowing”.
“We took a deep breath and said: ‘Right, how will we get through it?’” said Ms Malone, from Manly Vale.
But, despite their own personal plight, they are not interested in sympathy, but in raising awareness of rare diseases, in particular, Niemann-Pick Type C.
[Read the full article here: http://www.dailytelegraph.com.au/newslocal/northern-beaches/help-little-eddie-who-has-two-rare-diseases-says-mum/story-fngr8hax-1227046725882?nk=2a8c86abd21fbdfcc9935d0872c311dd]