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Welcome to ANPDF

Supporting Research and Families of
Niemann-Pick Disease in Australia

The Australian NPC Disease Foundation (ANPDF) aims to give hope, support and connection to those affected by Niemann-Pick disease type C (NPC) and Acid Sphingomyelinase Deficiency (ASMD) in Australia. We provide the opportunities through conversations, events and our disease-specific conference held in Victoria with an underlying focus on research for better treatments.

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Research. Cure. Persevere.

We are aiming to change the story of just "go home and make memories". We want to take action against the terrible realities of Niemann-Pick. Together.

Niemann-Pick in Australia

Discover more about Niemann-Pick Disease, the research we endorse, and how you can assist families impacted by this ultra-rare genetic disorder. Our goal is to increase awareness and generate funds for research to discover a cure for NPC. We are convinced that by working together, we can make a positive impact on the lives of those affected by Niemann-Pick Disease.

Stay Tuned with Updates

At the ANPDF, our volunteers and members use the blog section to share stories, news, and resources related to our mission. Our goal is to create a community where people can find comfort, support, and hope. We hope you find our blog informative and inspiring. Don't forget to subscribe to stay up-to with our latest posts!

Events

  • Charity Golf Day
    Charity Golf Day
    Fri, 03 Oct
    Mt. Derrimut Golf & Community Club
    03 Oct 2025, 8:30 am – 2:00 pm
    Join us at the 2025 Charity Golf Day on Friday, 3rd October at Mt Derrimut Golf & Community Club. Swing into action to support Gene Therapy research and Australian families living with Niemann-Pick disease.
  • 2025/2026 ANPDF AGM
    2025/2026 ANPDF AGM
    Sun, 16 Nov
    16 Nov 2025, 1:00 pm – 3:00 pm AEDT

Community Partners

As a small but dedicated charity, we rely on our community partners for both guidance and support in our endeavors. To all of these generous organisations, our sincerest thanks for your ongoing support.

Enviro Print Group
Ability Access Australia
CSM Advisors
Glenarthon Stock Horses
Domantay Legal
Goat Club
Derrimut 24:7 Gym

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