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Welcome to the ANPDF Community

The Australian NPC Disease Foundation (ANPDF) aims to give hope, support and connection to those affected by Niemann-Pick disease type C (NP-C) and Acid Sphingomyelinase Deficiency (ASMD) in Australia. We provide the opportunities through conversations, events and our disease-specific conference held in Victoria with an underlying focus on research for better treatments.

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Research. Cure. Persevere.

We are aiming to change the story of just "go home and make memories". We want to take action against the terrible realities of Niemann-Pick. Together.

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Events.

  • Elysium Hill Family Fun Day
    Elysium Hill Family Fun Day
    21 Apr 2024, 10:00 am – 3:00 pm AEST
    Join us for a day of family fun at Elysium Hill! 🎉 Support a great cause while enjoying free entry, live entertainment, furry friends, and more! Don't miss out on our raffle for a chance to win a luxurious escape!
  • 2024 NPC Conference
    2024 NPC Conference
    20 June 2024, 1:00 pm AEST – 21 June 2024, 5:00 pm AEST
    A conference for Niemann-Pick type C in Australia, attended by patients, families, medical and scientific professionals.
  • Minds in Motion Charity Cocktail
    Minds in Motion Charity Cocktail
    22 June 2024, 7:00 pm – 11:00 pm
    An engaging and enlightening cocktail event aimed at raising awareness and understanding for those living with Niemann-Pick disease in Australia.

Community Partners.

As a small but dedicated charity, we rely on our community partners for both guidance and support in our endeavors. To all of these generous organisations, our sincerest thanks for your ongoing support.

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