February - 2024

Community News and Events

Welcome to the ANPDF blog, where we share the latest updates, stories, and breakthroughs in the fight against Niemann-Pick Disease. Join us as we raise awareness, support families, and drive research forward.

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ANPDF

Feb 212 min read

2024 ANPDF Committee Elected

We are excited to introduce you to the team that will lead the Australian NPC Disease Foundation (ANPDF) in 2024/25.

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Childhood Dementia Initiative End of Year Report | February 8, 2024

ANPDF

Feb 91 min read

Childhood Dementia Initiative End of Year Report | February 8, 2024

The Childhood Dementia Initiative (CDI) has made significant progress in 2023, thanks to the dedication of its partners and supporters....

9 views

NP-C Corner: Everyone deserves to be seen

Ellie Van Velsen

Feb 82 min read

NP-C Corner: Everyone deserves to be seen

Do you use person-first or identity-first language? Ellie shares how she learned to be more inclusive of people with disabilities.

22 views

IntraBio Media Release | February 7, 2024

ANPDF

Feb 81 min read

IntraBio Media Release | February 7, 2024

The New England Journal of Medicine has published a "Science behind the study" editorial on IB1001 Read the full announcement from...

24 views

ANPDF

Feb 41 min read

In Honour of Mala Singh, 45yo, NP-C

25th May 1978 to 4th February 2024 We are deeply saddened to announce the passing of Mala Singh, a beloved member of our community, who...

127 views

ANPDF

Feb 31 min read

IntraBio Media Release | February 7, 2024

The New England Journal of Medicine has published the detailed results of the IB1001-301 Phase 3, Pivotal study with N-acetyl-L-leucine...

40 views

IntraBio Community Update | February 1, 2024

ANPDF

Feb 11 min read

IntraBio Community Update | February 1, 2024

New Drug Application for IB1001 for the treatment of NP-C disease was submitted to the US FDA in January 2024 Read the full statement...

50 views

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