July - 2024

Community News and Events

Welcome to the ANPDF blog, where we share the latest updates, stories, and breakthroughs in the fight against Niemann-Pick Disease. Join us as we raise awareness, support families, and drive research forward.

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New Kando Martial Arts Fundraiser: Unleash Your Inner Warrior at Shihan Paul's Self-Defence Class

ANPDF

Jul 243 min read

New Kando Martial Arts Fundraiser: Unleash Your Inner Warrior at Shihan Paul's Self-Defence Class

**New raffle prizes added! Are you ready to enhance your self-defence skills and boost your confidence? Look no further because Shihan...

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ANPDF

Jul 171 min read

Azafaros Media Release | July 16, 2024

Azafaros announces positive topline Phase 2 study data with nizubaglustat in GM2 gangliosidosis and Niemann-Pick disease type C Read the...

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In Honour of Sebastian Chamberlain, 24yo, NP-C

ANPDF

Jul 122 min read

In Honour of Sebastian Chamberlain, 24yo, NP-C

12th February 2000 to 12th July 2024 It is with heavy hearts that we announce the passing of Sebastian Chamberlain, who peacefully left...

109 views

2024 NPC Conference: Advancing Research and Care for Niemann-Pick Disease

ANPDF

Jul 12 min read

2024 NPC Conference: Advancing Research and Care for Niemann-Pick Disease

The 2024 NPC Conference, hosted by the Australian NPC Disease Foundation (ANPDF), took place at the Florey Institute of Neuroscience and...

37 views

A Night of Hope: Minds in Motion Charity Cocktail

ANPDF

Jul 12 min read

A Night of Hope: Minds in Motion Charity Cocktail

On June 22, 2024, the Australian NPC Disease Foundation (ANPDF) hosted the Minds in Motion Charity Cocktail in Port Melbourne at The...

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