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Second treatment approved by FDA for Niemann-Pick disease, type C: Introducing AQNEURSA
FDA approval of AQNEURSA offers new hope for Australian families with Niemann-Pick disease, promising better treatment and quality of life.
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Sep 25, 20244 min read
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A New Hope for NP-C Families: Introducing Miplyffa
New Hope for NP-C Families: Miplyffa, the first FDA-approved treatment for NPC, offers a promising future for our loved ones. Stay informed!
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Sep 21, 20242 min read
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Mandos Health Media Release | September 10, 2024
Read the letter from Mandos Health here: Here is a summary of the article: INPDA 2023 Meeting : Mandos attended the 2023 INPDA meeting in...
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Sep 16, 20241 min read
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Pfrieger's Digest | Issue 11 - March 2024 – July 2024
Summaries of latest research advances related to Niemann-Pick diseases, acid sphingomyelinase deficiency (ASMD) and Niemann-Pick type C...
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Sep 6, 20241 min read
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Kando Martial Arts Fundraiser: Results
We are thrilled to announce the results of our recent fundraiser for Kando Martial Arts! Thanks to the incredible support from our...
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Sep 4, 20241 min read
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