October - 2024

Community News and Events

Welcome to the ANPDF blog, where we share the latest updates, stories, and breakthroughs in the fight against Niemann-Pick Disease. Join us as we raise awareness, support families, and drive research forward.

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ANPDF

Oct 311 min read

2024 Silver Raffle Results

Thank you to all the participants of the Silver Raffle in 2024!

6 views

Crazy Hair Day Brings Fun and Awareness to Alexandra Primary School!

ANPDF

Oct 281 min read

Crazy Hair Day Brings Fun and Awareness to Alexandra Primary School!

On October 18th, students at Alexandra Primary School unleashed their creativity for a special "Crazy Hair Day" fundraiser, all in...

10 views

Mandos Health Media Release | October 22, 2024

ANPDF

Oct 231 min read

Mandos Health Media Release | October 22, 2024

Read the letter from Mandos Health here: The Mandos Health October 2024 update highlights their progress in Niemann-Pick Type C (NPC)...

44 views

Raising Awareness for Niemann-Pick Disease: The Meaning and Importance of the Silver Ribbon

ANPDF

Oct 183 min read

Raising Awareness for Niemann-Pick Disease: The Meaning and Importance of the Silver Ribbon

As an organisation passionately dedicated to spreading awareness about Niemann-Pick Disease, we are thrilled to delve into the...

14 views

ANPDF

Oct 161 min read

2024 Poker Tournament: Results

We are thrilled to announce the results of our recent fundraiser: Poker Tournament for Niemann Pick! Thanks to the incredible support...

5 views

Silver Stories: Greg's Journey Living with Niemann-Pick Disease

ANPDF

Oct 154 min read

Silver Stories: Greg's Journey Living with Niemann-Pick Disease

Despite Niemann-Pick Disease, Greg’s family remains resilient, providing care, love, and hope for him and others affected by NPC.

150 views

Exciting News: New INPDR Site Opening in Melbourne for Niemann-Pick Disease

ANPDF

Oct 152 min read

Exciting News: New INPDR Site Opening in Melbourne for Niemann-Pick Disease

15 October 2024 - INPDR, Tyne & Wear England. We are thrilled to share the announcement of a significant development in the fight against...

8 views

NP-C Corner: Genetic Counselling and NPC

Dave Badcock

Oct 82 min read

NP-C Corner: Genetic Counselling and NPC

We invited our favourite Melbourne University volunteer to share his thoughts in this special edition of the NP-C Corner. Check it out!

19 views

Niemann-Pick Awareness Month 2024: Shining a Silver Light on NPD

ANPDF

Oct 12 min read

Niemann-Pick Awareness Month 2024: Shining a Silver Light on NPD

October is Niemann-Pick Disease Awareness Month and we will be shining a silver light in 2024!

89 views

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