Community News and Events
Welcome to the ANPDF blog, where we share the latest updates, stories, and breakthroughs in the fight against Niemann-Pick Disease. Join us as we raise awareness, support families, and drive research forward.
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Topics
Reflecting on a Year of Progress: ANPDF’s 2024 Highlights
NP-C Corner: Hope on the Horizon
Honouring Mala Singh’s Wish: A Legacy of Hope
NP-C Corner: Unpacking the Blood-Brain Barrier – A Key to NPC Treatment
Raising Awareness for Niemann-Pick Disease: The Meaning and Importance of the Silver Ribbon
Silver Stories: Greg's Journey Living with Niemann-Pick Disease
Exciting News: New INPDR Site Opening in Melbourne for Niemann-Pick Disease
NP-C Corner: Genetic Counselling and NPC
Niemann-Pick Awareness Month 2024: Shining a Silver Light on NPD
Second treatment approved by FDA for Niemann-Pick disease, type C: Introducing AQNEURSA
A New Hope for NP-C Families: Introducing Miplyffa
NP-C Corner: Global Research is Lacking
In Honour of Sebastian Chamberlain, 24yo, NP-C
2024 NPC Conference: Advancing Research and Care for Niemann-Pick Disease
In the media: 'Born with a rare genetic disease, Noah in fight for better future'
In the media: Deanna Carpino Interview with Tony Tardio on Italian Il Globo
NP-C Corner: Living with Loss
NP-C Corner: Losing the ability to eat safely
In the media: 'Creating community while in search of a cure'
In the media: Vertigo drug could be used to treat Niemann-Pick type C disease, known as ‘childhood Alzheimer’s’