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Community News and Events

Welcome to the ANPDF blog, where we share the latest updates, stories, and breakthroughs in the fight against Niemann-Pick Disease. Join us as we raise awareness, support families, and drive research forward.

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ANPDF

Oct 22, 20222 min read

"I Need My Village" - ANPDF answers the call

It takes a village to raise a child, so they say. But when your village is trapped in another country by circumstance and rising airfare...

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Pfrieger's Digest | Issue 7 - September 2022

ANPDF

Oct 10, 20221 min read

Pfrieger's Digest | Issue 7 - September 2022

Pfrieger's Digest for Niemann-Pick type C: Summaries of research advances on selected peer-reviewed publications in scientific journals....

41 views

October is Niemann-Pick Disease Awareness Month

ANPDF

Sep 28, 20222 min read

October is Niemann-Pick Disease Awareness Month

October is Niemann-Pick Disease Awareness Month. We are prepared to take our fight all the way! Will you join us?

137 views

ANPDF

Sep 18, 20221 min read

In honour of Noah Fox, 8yo, NP-C

Today, our hearts go out to the Melbourne-based family of eight-year-old Noah. This NPC angel passed away Saturday morning due to complicati

166 views

In the media: Brave Mum of 3 children with Niemann-Pick disease type C

ANPDF

Sep 18, 20221 min read

In the media: Brave Mum of 3 children with Niemann-Pick disease type C

Brave mum of 3 children with NP-C shares her story with ABC News.

332 views

ANPDF

May 30, 20221 min read

New Volunteer Projects Available!

Check out our new projects page where you can read more about our latest projects that need some good ol'fashioned volunteer power. We...

50 views

ANPDF

Apr 4, 20221 min read

New NPC Champion: Urban Caravans

The ANPDF is proud to welcome Urban Caravans as our newest NPC Champion! Through a familial connection from one of our general committee...

58 views

In honour of Sebastian Moroney, 3yo, NP-A

ANPDF

Jan 10, 20221 min read

In honour of Sebastian Moroney, 3yo, NP-A

Our hearts go out to a Sydney based family whose little boy had "defied predictions" about his life expectancy only to become the...

23 views

In the media: New Hope for Children with Rare Diseases

ANPDF

Feb 28, 20202 min read

In the media: New Hope for Children with Rare Diseases

"Game changer for kids with rare diseases" - Story by Alanah Frost, Herald Sun Images by Jay Town, Herald Sun Read the full article here....

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