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In Honour of Timmy Lloyd, 36yo, NP-C
11th September 1989 to 2nd December 2025 Timmy Lloyd passed away 2nd December 2025. It is with deeply broken hearts that we share the passing of our beloved Timmy Lloyd — known to so many as our RockGod. Born on 11 September 1989 , Timmy left us on 2 December 2025 , surrounded by love, music, and the people who cherished him. From a young age, Timmy’s life was shaped by the complex and challenging journey of living with Niemann-Pick Disease Type C (NPC), a rare, progressive n
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Dec 33 min read
In Honour of Sebastian Chamberlain, 24yo, NP-C
12th February 2000 to 12th July 2024 It is with heavy hearts that we announce the passing of Sebastian Chamberlain, who peacefully left...
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Jul 12, 20242 min read
In Honour of Mala Singh, 45yo, NP-C
25th May 1978 to 4th February 2024 We are deeply saddened to announce the passing of Mala Singh, a beloved member of our community, who...
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Feb 4, 20241 min read
In honour of Will Swanson, 6yo, NP-C
20th January 2017 to 5th February 2023 The Australian NPC Community share their hearts and condolences with the Melbourne-based family of...
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Feb 6, 20231 min read
In honour of Noah Fox, 8yo, NP-C
Today, our hearts go out to the Melbourne-based family of eight-year-old Noah. This NPC angel passed away Saturday morning due to complicati
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Sep 18, 20221 min read