Pfrieger's Digest | Issue 11 - March 2024 – July 2024
Summaries of latest research advances related to Niemann-Pick diseases, acid sphingomyelinase deficiency (ASMD) and Niemann-Pick type C...
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Community News and Events
Welcome to the ANPDF blog, where we share the latest updates, stories, and breakthroughs in the fight against Niemann-Pick Disease. Join us as we raise awareness, support families, and drive research forward.
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ANPDF
Jun 172 min read
In the media: 'Born with a rare genetic disease, Noah in fight for better future'
By Robyn Riley (Herald Sun Medical Editor), June 16, 2024. Read the full article here. Imagine a young boy named Noah, only seven years...
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ANPDF
Apr 22 min read
In the media: 'Creating community while in search of a cure'
"Smart thinker: Creating community while in search of a cure" - By Elli Jacobs (MiNDFOOD), Sunday March 17, 2022. Read the full article...
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ANPDF
Mar 102 min read
In the media: Vertigo drug could be used to treat Niemann-Pick type C disease, known as ‘childhood Alzheimer’s’
By Sarah Booth (Herald Sun), March 10, 2024. Read the full article here. Melbourne, Victoria – In a significant medical breakthrough,...
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ANPDF
Feb 91 min read
Childhood Dementia Initiative End of Year Report | February 8, 2024
The Childhood Dementia Initiative (CDI) has made significant progress in 2023, thanks to the dedication of its partners and supporters....
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ANPDF
Feb 81 min read
IntraBio Media Release | February 7, 2024
The New England Journal of Medicine has published a "Science behind the study" editorial on IB1001 Read the full announcement from...
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Ellie Van Velsen
Nov 8, 20233 min read
NP-C Corner: Storytelling DNA
Our DNA can tell us more information than you might think. As ‘the codebook for life’, it has many stories to tell. Your DNA can give us...
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Ellie Van Velsen
Sep 8, 20232 min read
NP-C Corner: Exercise as medicine
There is a big misconception that the point of exercise is to lose weight. This is only one of many benefits exercises can have for our...
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ANPDF
Jan 10, 20231 min read
Azafaros Media Releases | January 5-9, 2023
"Azafaros Receives FDA's IND Clearance and Fast Track Designation for Lead Asset AZ-3102" Read the press release from January 5, 2023...
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ANPDF
Nov 7, 20221 min read
In the media: ‘How do I tell my kids they won’t grow up?’
"How do I tell my kids they won't grow up" - By Rebecca Whitefield-Baker (Adelaide Now), Sunday November 6, 2022. Read the full article...
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ANPDF
Oct 10, 20221 min read
Pfrieger's Digest | Issue 7 - September 2022
Pfrieger's Digest for Niemann-Pick type C: Summaries of research advances on selected peer-reviewed publications in scientific journals....
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ANPDF
Sep 18, 20221 min read
In the media: Brave Mum of 3 children with Niemann-Pick disease type C
Brave mum of 3 children with NP-C shares her story with ABC News.
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ANPDF
Feb 28, 20202 min read
In the media: New Hope for Children with Rare Diseases
"Game changer for kids with rare diseases" - Story by Alanah Frost, Herald Sun Images by Jay Town, Herald Sun Read the full article here....
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