Community News and Events
Welcome to the ANPDF blog, where we share the latest updates, stories, and breakthroughs in the fight against Niemann-Pick Disease. Join us as we raise awareness, support families, and drive research forward.
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Pfrieger's Digest | Issue 11 - March 2024 – July 2024
In the media: 'Born with a rare genetic disease, Noah in fight for better future'
In the media: 'Creating community while in search of a cure'
In the media: Vertigo drug could be used to treat Niemann-Pick type C disease, known as ‘childhood Alzheimer’s’
Childhood Dementia Initiative End of Year Report | February 8, 2024
IntraBio Media Release | February 7, 2024
NP-C Corner: Storytelling DNA
NP-C Corner: Exercise as medicine
Azafaros Media Releases | January 5-9, 2023
In the media: ‘How do I tell my kids they won’t grow up?’
Pfrieger's Digest | Issue 7 - September 2022
In the media: Brave Mum of 3 children with Niemann-Pick disease type C
In the media: New Hope for Children with Rare Diseases