Search
Reflecting on a Year of Progress: ANPDF’s 2024 Highlights
Reflecting on 2024: ANPDF’s progress in advocacy, fundraising, and community support. Looking ahead to a brighter future for NPC in 2025.
ANPDF
Dec 22, 20243 min read
16 views
NP-C Corner: Hope on the Horizon
“Just go home and make memories” These words have rung in the ears of parents as a doctor drops a life-changing diagnosis of Niemann-Pick...
Ellie Van Velsen
Dec 18, 20242 min read
62 views
In Honour of Mala Singh, 45yo, NP-C
25th May 1978 to 4th February 2024 We are deeply saddened to announce the passing of Mala Singh, a beloved member of our community, who...
ANPDF
Feb 4, 20241 min read
135 views
Welcome to NP-C Corner
This is the first of (hopefully!) many blog posts to come. Who am I? My name is Ellie. I have two cousins who were diagnosed with...
Ellie Van Velsen
Mar 5, 20232 min read
168 views