Community News and Events
Welcome to the ANPDF blog, where we share the latest updates, stories, and breakthroughs in the fight against Niemann-Pick Disease. Join us as we raise awareness, support families, and drive research forward.
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Topics
Silver Stories: Greg's Journey Living with Niemann-Pick Disease
In the media: 'Born with a rare genetic disease, Noah in fight for better future'
In the media: Deanna Carpino Interview with Tony Tardio on Italian Il Globo
In the media: 'Creating community while in search of a cure'
In the media: Vertigo drug could be used to treat Niemann-Pick type C disease, known as ‘childhood Alzheimer’s’
In Honour of Mala Singh, 45yo, NP-C
In honour of Will Swanson, 6yo, NP-C
Diagnosis Day - Full series out now
In the media: ‘How do I tell my kids they won’t grow up?’
"I Need My Village" - ANPDF answers the call
In honour of Noah Fox, 8yo, NP-C
In the media: Brave Mum of 3 children with Niemann-Pick disease type C
In honour of Sebastian Moroney, 3yo, NP-A