Research Updates

Community News and Events

Welcome to the ANPDF blog, where we share the latest updates, stories, and breakthroughs in the fight against Niemann-Pick Disease. Join us as we raise awareness, support families, and drive research forward.

Jump to the NP-C Corner by Ellie

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ANPDF

Jul 171 min read

Azafaros Media Release | July 16, 2024

Azafaros announces positive topline Phase 2 study data with nizubaglustat in GM2 gangliosidosis and Niemann-Pick disease type C Read the...

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ANPDF

Jun 29, 20231 min read

Intrabio Media Release | June 29, 2023

"IntraBio Announces Positive Pivotal Trial Results of IB1001 for the Treatment of Niemann-Pick Disease Type C" Read the full article...

47 views

ANPDF

Jun 30, 20222 min read

It's a wrap! 2022 NPC Conference

The annual NPC Conference, both live and online, attended by patients, families, clinicians and researchers of Niemann-Pick disease.

127 views

Niemann-Pick Disease Type C: Working together to make a difference

ANPDF

Oct 11, 20211 min read

Niemann-Pick Disease Type C: Working together to make a difference

This lecture will present the Australian collaboration and latest research on NP-C, a rare genetic disorder that leads to childhood...

43 views

ANPDF

Jul 27, 20211 min read

Reconnecting at the 2021 NPC Conference

Adapting to the times, our Australian NPC community had the opportunity to connect at this year's conference with our first-ever...

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