Category Archives: Fundraising Updates

$50,000 CODRT Grant

Our scientists have been rewarded a grant for further research…. we’re getting closer and closer as each dollar gets committed to NPCD research.

Million Dollar Bike Ride Grant Program from Orphan Disease Center, University of Pennsylvania

Principal Investigator: Professor Ashley Bush
Project title: Dual targeting of defective lipid and metal pathways in Niemann-Pick type C disease: an in vitro pilot study

The project proposes to undertake a pilot study to screen and identify potent combinations of metal-modulating compounds and miglustat and/or cyclodextrin that will restore cellular metal and cholesterol balance using NP-C1 patient fibroblast cells harbouring different NPC1 mutations.  The long-term goal is to develop a synergistic combination therapy that will prolong the life of NP-C patients and restore their neurological and other functions.

Award amount: US$50,000
Award period: 1/1/2015 – 31/12/2015

SAVE THE DATE: Cure4Ed Family Fun Day. Sunday 26th of October

Put it in your diaries and standby in the next day or so for a detailed update on our little guy  and further details of the day and how you may wish to participate. And photos and  thank you from the last event: the movie night: Reading

A Call for Donations for the Silent Auction

Feeling like you want to jump on the band wagon and help in some way, then why not pledge a donation for our Silent Auction which will be held on the Family Fun Day on Sunday 26th of October. Donations could be small or large, from your work place, a gift voucher you purchase and donate,…Continue Reading

A Long Over Due Fundraising Update and Thanks

[View all the photos over here] The fundraising momentum continues with another 2 fundraisers since our Movie night in May, both organised without me (can you believe it?) and so a very big thank you is long over due to all of those who organised, participated, donated or supported. Judy Sharp’s Bridge Day At the…Continue Reading

Dick Smith Fundraising an Opportunity for Cash for NPCD Research

Hi Everyone, Here is some info on the Dick Smith Foods Charity give away. If you could please help out by taking a photo with a Dick Smith Product and sending it in, nominating the Niemann-Pick Type C Disease Foundation, we may have a chance off our foundation getting some of the money that they…Continue Reading

Fundraising continues with sausage sizzles and cake stalls

The family teams of Aaron and Taylor Adams, Matthew and Timmy Lloyd, and little Eddy Sharp continue to kick goals with fundraising in their local communities. The Adams family conducted a sausage sizzle at Kangaroo Flats IGA with an Easter Egg raffle raising $2000 towards the research goal.  This also included selling of our merchandise…Continue Reading

Axedale fundraiser for NPC Disease

The Axedale Tavern owners Garry and Corrine Cummins have come on board in full swing.  The weekend of May 17th and 18th will see the Tavern come alive with fundraising fun with live music from local performers in Grant Bull and Joanne Woodward, together with Melbourne award winning cover band East Ravine!  A silent and…Continue Reading

Band Bash at Bundalong

Come along to the Bundalong Tavern (7419 Murray Valley Road, Bundalong) and enjoy live music from Melbourne’s Sheila’s of the 70′s and local talent Motnelle and Fanbelt. Entry is $20 per adult or $50 family. Bring the kids for face painting and games, sausage sizzle, trade stalls, and craft and auction selling donated goods. All monies raised…Continue Reading

Cycle 4 Sam – Shining his star… Part II

Matty & Timmy Lloyd chat with Marty before the start of day 2 Mandy & Paul checking out the day’s route. A quick riders briefing before the team head off Releasing 21 pink balloons in memory of Cassie Stallard RIP Paul & Mandy Jacobs lead the team through town in the Truck On their way…..…Continue Reading