Advocating for Treatments in Australia

This webinar will feature Louise Healy, Advocacy and Engagement Manager at Rare Voices Australia (RVA), alongside the Australian NPC Disease Foundation (ANPDF) team, discussing how we can advocate for FDA-approved treatments for rare diseases in Australia. Join us to learn about the steps being taken by the ANPDF, the challenges of securing treatment approval, and how you can get involved.

Agenda:

1. Welcome and Introduction to ANPDF and Louise Healy (5 minutes)

2. Louise Healy and RVA: Advocacy for Rare Disease Treatments (15 minutes)

3. ANPDF's Current Advocacy Steps for FDA-Approved Treatments (10 minutes)

4. Q&A Session (30 minutes)