25th May 1978 to 4th February 2024
We are deeply saddened to announce the passing of Mala Singh, a beloved member of our community, who lost her battle with Niemann-Pick disease type C (NPC) at 5am this morning. She was 45 years old.
Mala was a remarkable woman who touched many lives with her kindness, generosity, and courage. She was a devoted sister, and friend who always had a smile and a word of encouragement for everyone. She was also a passionate advocate for NPC awareness and research, sharing her story and raising funds by donating her beautiful handmade quilts.
NPC is a rare and fatal genetic disorder that affects the metabolism of cholesterol and other lipids in the body. It causes progressive damage to the brain, liver, spleen, and lungs, leading to various symptoms such as cognitive impairment, seizures, difficulty swallowing, and loss of mobility. There is currently no cure for NPC, and the average life expectancy is around 10 years after diagnosis.
Mala will be greatly missed by all who knew her. We hope that her legacy will live on through her words and deeds and that one day we will find a cure for this devastating disease.
Rest in peace, Mala. You are forever in our hearts.
To join our fight, as well as fund vital research for a cure, support the Australian NPC Disease Foundation in its goals of "Research. Cure. Persevere."
Ways to support NP-C in Australia:
Shop at our online NPC store
Fundraise your way! Check our free resources and inspo online.