8th December 2013 to 17th September 2022
Today, our hearts go out to the Melbourne-based family of eight-year-old Noah. This NPC angel passed away Saturday morning due to complications caused by NP-C, with his loving mum by his side.
"Our little boy passed away peacefully this morning of complications from Neimann Pick Type C disease, an insidious infliction, which he was born with, that has slowly taken so much from him. He fought like a warrior for 8 years. Never cried, never complained. " - Geoff Lindsay
Despite over five years of battling many symptoms of Childhood Dementia caused by Niemann-Pick disease, type C - his undeniable spirit and bravery was never dimmed.
In a statement, Australian NPC Disease Foundation president, Deanna Carpino, said: "The Australian NPC Disease Foundation extends its deepest sympathy and condolences to Noah's family and loved ones."
"Noah's passing will be deeply felt by all those in NPC community," she said.
Together with his mum, Noah shared his story to raise awareness and funding for the hope of a cure. Follow the links below.
'Meet Noah Fox' - Awareness video of Noah's story - link here
'Living with childhood dementia - this is noah's story' - article online by sourcekids.com.au - link here
To join our fight, as well as fund vital research for a cure, support the Australian NPC Disease Foundation in its goals of "Research. Cure. Persevere."
Ways to support NP-C in Australia:
Join us at our Annual Charity Gala in Melbourne
Shop at our online NPC store
Fundraise your way! Check our free resources and inspo online.