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Joining the Niemann-Pick Community

Join the Australian NPC Disease Foundation today and become part of a dedicated community committed to raising awareness and supporting research for Niemann-Pick Type C disease.

About your ANPDF Membership

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The Australian NPC Disease Foundation (ANPDF) supports the Niemann-Pick Disease (NPD) community to achieve the extraordinary and deliver projects for both long and short-term benefits to those diagnosed with NPD (including ASMD) in Australia. ANPDF values your membership and support. Every membership strengthens the voice of the NPD community on both the National and International platform, impacting the availability of clinical trials and advocacy efforts.

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By becoming a member, you join a network of individuals and families who support each other through shared experiences and collective action. Your membership helps ANPDF provide critical support and research contributions to our community, which otherwise may not be possible. Together, we can make a difference and bring hope to those affected by NPD.

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NPD Family Members can apply for financial support under the ANPDF’s Compassionate Care Program, usually with assistance from your Patient Liaison Officer. The Travel Subsidies Program is also available for the Annual Conference and can be made when event registration opens in March.

  • Family Membership

    0$
     
    Our free Family Membership offers a welcoming space for individuals and families affected by Niemann-Pick diseases to connect, share experiences, and access valuable resources.
    Valid for 12 months
    • Support from a dedicated Patient Liaison Officer
    • Access to all online resources
    • Access to Travel Subsidies and Compassionate Care Programs
    • Early Bird Registration to Annual Conference
    • Vote and Nominate positions at AGM

  • Supporter Membership

    10$
    Every month
    Perfect for those wanting to connect with and support the Niemann-Pick disease community in Australia
    Valid for 12 months
    • 25% Discount to all ANPDF hosted events
    • Access to online resources
    • Welcome Pack
    • Annual Report

Each membership is valid for 12 months. Cancellation is easily done online by the member.

Member responsibilities:

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  • Respect the privacy and confidentiality of fellow members and sensitive information shared within the community

  • Support the purpose and values of the ANPDF

  • Keep your contact details up to date

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Have questions about your membership?

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To find out more about membership with the ANPDF, please contact your patient liaison officer or our team:

By phone on +61 420 985 510 or via email at info@npcd.org.au

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