Mandos Health Media Release | September 10, 2024
- ANPDF
- Sep 16, 2024
- 1 min read
Read the letter from Mandos Health here:
Here is a summary of the article:
INPDA 2023 Meeting: Mandos attended the 2023 INPDA meeting in Tarragona, Spain, highlighting progress in the NPC community and supporting adrabetadex (VTS-270) research.
Upcoming Conferences: Mandos will sponsor the 2024 Parseghian Fund Annual Conference and the NNPDF Family Support & Medical Conference.
Research and Development: the FDA has accepted Mandos' request for a Type C Meeting scheduled in October to discuss the direction of the adrabetadex program’s development.
Expanded Access Program: the EAP age criteria have been expanded to include patients from 3 months to 25 years old
To join our fight, as well as fund vital research for a cure, support the Australian NPC Disease Foundation in its goals of "Research. Cure. Persevere."
Ways to support NP-C in Australia:
Check out upcoming events
Shop at our online NPC store
Fundraise your way! Check our free resources and inspo online.
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