“Just go home and make memories” These words have rung in the ears of parents as a doctor drops a life-changing diagnosis of Niemann-Pick...

The blood-brain barrier is a roadblock in NPC treatment, but new strategies aim to safely deliver therapies directly to the brain.

We invited our favourite Melbourne University volunteer to share his thoughts in this special edition of the NP-C Corner. Check it out!

Limited clinical trial opportunities and a decrease in global trials over the past 5 years means advocacy has never been more crucial.

There is no perfect grief guide for when this day comes, but there is information that can help people understand how to navigate grief.

Sometimes you never realise what you have until it’s gone. Join Ellie as she explores what PEG feeding means for those living with NP-C.

Do you use person-first or identity-first language? Ellie shares how she learned to be more inclusive of people with disabilities.

Ellie explores what clinical trials are and how they impact patients of Niemann-Pick diseases.