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A Night of Hope: Minds in Motion Charity Cocktail

On June 22, 2024, the Australian NPC Disease Foundation (ANPDF) hosted the Minds in Motion Charity Cocktail in Port Melbourne at The Timber Yard. This event was a spectacular evening dedicated to raising awareness of Niemann-Pick disease (a group of a rare and fatal genetic disorders) and funds for research of a new gene therapy treatment for Niemann-Pick disease type C (NP-C). Of the 440 guests, more than a quarter were attending one of our events for the first time.



Event Highlights

Local NPC Warrior, Noah Carpino, completing his second DNA Extraction Experiment with The Florey at Minds in Motion.
  • Hosts and Entertainment: The night was hosted by Col Cameron, with live music from DJ Antony Papalia. Guests enjoyed award-winning short film screenings, engaging VR experiences, and a mesmerizing performance by magician Jay Cristo.

  • Games and Cocktails: Guests explored new ways to contribute to the cause through a special scavenger hunt that highlighted the diagnosis journey, a fun wine ring toss game called ‘Fling the Ring,’ and a special cocktail where $5 from every glass purchased went towards the cause.

  • Live Interviews: Col spoke to local, interstate and international guests throughout the night to share different perspectives surrounding the disease. Guests included Mandy and Deanna from ANPDF, a patient family from Perth, Prof Trevor Kilpatrick and Dr Ya Hui Hung from the The Florey, and Dr Caroline Hastings from Cyclo Therapeutics.

Interview with Mandy Whitechurch, Founder of ANPDF, and Deanna Carpino, General Manager of the ANPDF
  • Food and Drinks: Attendees were treated to a creative selection of mouth-watering italian-cuisine canapes and premium drinks, including spirits, wine, tapped beer, and cider.

One of many young faces that were honoured in the Minds in Motion Memorial Avenue
  • Silent Auction and Raffles: The event featured a silent auction and two raffles, with all proceeds going towards funding critical research for NP-C. see Luxury Travel Raffle Results.

  • Memorial Avenue: Central to the event was a series of Cherry Blossom Trees from which photos of those who have lost their lives to this dreadful disease. Some families were in attendance and proud to honour their loved ones in this way.


Fundraising Success

From an initial target of $36,000, the ANPDF was thrilled and honored to have raised a net amount of $53,487! These funds were raised through sponsorships, donations, ticket sales, silent auction, raffle tickets, cocktail sales, and event game sales. The funds will support local research conducted at The Florey Institute and the new Care and Guidelines project, which aims to improve and standardise treatment in Australian hospitals.


Support the Cause

Your support can make a significant difference in the lives of those affected by NP-C. Consider making a donation to help fund vital research and provide care for patients and their families. Donate Now


Event Gallery

Relive the memorable moments from the Minds in Motion Charity Cocktail by visiting our Event Gallery. For just $4.99 you can also download your favourite memory in high-resolution without watermarks.



To all those who attended or supported the event online, thank you for your generosity in the fight against Niemann-Pick disease type C. Together, we can make a difference!


Feel free to share this post to spread awareness and encourage others to support this important cause. If you have any questions or need more information, don’t hesitate to reach out!

 
Thank you to our incredible event sponsors!

Cyclo Therapeutics

PREMIER SPONSOR


Cyclo Therapeutics are dedicated to developing life-changing medicines through science and innovation for patients and families living with challenging diseases.


Silver Sponsors
Bronze Sponsors



Ticketing Partners
Event Suppliers

Printing Partner Enviro Print Group www.enviroprintgroup.com.au As both a community and event partner, this Aussie owned company donated all their printing services to our event.

Cinema Partner A Hiring https://ahiring.com.au/ Local party hire provider, A Hiring donated the use of our Movie set allowing for the screening of interviews and informative films



Virtual Reality Experiences https://www.extremevr.com.au

Science Demonstrations florey.edu.au

Cherry Blossom Trees https://www.decortree.com.au



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